Second blog post: Slow and Steady Wins the Race
Fast forward past a year of treatment that included all those medications from Mexico. The morning after the first dose of doxy, I could turn my head. My chronically swollen neck glands were less so. We took doxy and made it through the herxing (symptom flares from the killing off of parasites). We felt better but if we stopped taking antibiotics, our symptoms quickly returned. Continuing research had taught me the dangers of long-term antibiotics so I was nervous about that. We were using many of the supplements suggested in both the Horowitz book (Why Can't I Get Better) and the Buhner book (Healing Lyme). Some of them brought relief while others didn't. The point is, we never got better and stayed better. We underwent aggressive therapies from our renowned LLMD including ozone, rife, Myers cocktail, glutathione, Vitamin C, UV light, all of which seemed to help while we were undergoing treatment. But, within ten days away from the treatment, we could feel our symptoms creeping back in. I have a lot to say about those treatments, and especially the diet and nutritional changes we made and the supplements we took (and continue to take) that keep our immune systems strong. But first I want to talk about the thing that helped us the most and brought us lasting recovery: anthelmintics.
Dr. Alan McDonald's London Lecture of May 15, 2016, must have come across my newsfeed soon after it was recorded. Dr. McDonald's research made so much sense that I immediately emailed it to Logan's Nurse Practitioner (NP) Jennifer, who we saw at the prestigious LLMD's office. As a longtime horse and dog person, I was very familiar with the use of wormer in animals and it just made sense to me that people with parasites would also benefit from this treatment. So I began researching the use of wormer in humans. You should do this too. Do not take my word for any of this. Look at my links, study the information here, and then do your own research. Watch Dr. McDonald's lecture and heed his warning: People with Lyme Carditis (parasites in the heart) should be very wary of using wormer. I was desperate. I did my research, consulted our NP, and tried various wormers out on myself before allowing Logan to use them.
Here's what I learned:
There are groups all over the internet where people are ingesting horse and goat paste wormer. I wasn't willing to do that, but had realized the extent to which everything we put ON the body ends up IN the body. So my idea was, if we couldn't get a prescription for wormer, that we would use horse paste where the worms live . . . on our spines. (According to Dr. McDonald, the Borrelia-infected nematodes live in our cerebral spinal fluid and feed in/on our brains.) Watch Dr. McDonald's lecture!
The Jimmy Carter Foundation, along with Merck Pharmaceutical, sends millions of doses of ivermectin to countries in Africa that are stricken with River Blindness (caused by a worm parasite). However, Ivermectin is rarely prescribed for humans in the US and it is ridiculously expensive.
The next time we saw Logan's NP, we discussed Dr. McDonald's research. She wrote Logan a prescription for a low-dose (3 mg) of Ivermectin. When we presented the prescription to the guy working at the pharmacy, he warned us that it was going to cost some ridiculous price ($1200 comes to mind but so does $2000 so I wouldn't swear to either.). So we asked him to fill only a fourth of the prescribed number of pills, just enough to try it.
The test for nematodes in the spinal fluid would be a spinal tap. Our NP and I agreed that the test would be more invasive and harmful than the treatment. It's a shame there is not a better test. Veterinarians test and treat our pets for parasites everyday, using the office microscope. It is criminal that we are testing and worming our pets but not ourselves or our kids. Every month for fifteen years, I have given my dog Heartgard. The active ingredient: Ivermectin. I have a thirty-one-year-old horse who has been wormed every three months for the twenty years he has been with me. But not my kids. There is a real arrogance in the US. We know that people in developing countries have parasites but do not think that Americans have parasites. And it is so easy to get parasites. One improperly washed salad, undercooked burger, infested sushi roll is all it takes. Not even a bug bite, just eating. Or sleeping with your pet. Or going barefoot. Or swimming in questionable water (all water is now questionable).
This is one of many reasons why the Lyme test is unreliable. Not only is it very limited in hitting on the many different strains of Borrelia, it completely overlooks any of the other parasites that mammals can be infected with. When that Western Blot comes back normal, everyone is like, okay, whew, no parasites. This lack of testing for other parasites is devastating.
Here are links to the most relevant neurotoxin-elimination / anthelmintic protocols that I returned to over and over as we learned about and used various wormers:
Like Bryan Rosner's book, Freedom From Lyme Disease, this article by him is dense with important information and needs to be printed out and studied with pen in hand for taking notes. My copy is full of highlighted passages and scribbles. We had already begun our own parasite treatment before I came across Rosner's work, so we did not do the parasite protocol in the same order he did, nor did we take all of the wormer's that he has listed in his protocol. (Some of them I'm still trying to get my hands on.) But his work was definitely a big part of our learning curve and subsequent treatment. I bought his book because this article was so good and because I believe in supporting people who are doing good work and even giving some of it away to help people.
Here is an important article from Dr. Simon Yu (author of Accidental Cure) that contains useful information about the safety and efficacy of Ivermectin.
This article from Dr. Klinghardt does not contain a wormer protocol but it is full of valuable information for dealing with neurological symptoms.
This article is full of details about the use of the wormer fenbendazole used in combination with red reishi mushroom (capsules), which is a protocol found in the work of Steve Beddingfield on the FB group Morgellon's Support Protocol. This is not a group for the faint of heart as there are many graphic photos of Morgellon's sores and other squeamy things. The photos that Steve and others in the group post of their disease and infectious agents are what inspired me to buy a microscope and learn to use it. Looking at what was coming out of me on this protocol, I was very surprised to find that I was getting rid of a lot of slime mold. I would suddenly projectile-cough up thick rubbery balls. It was horribly amusing. Because of getting rid of mold (which I didn’t know I had) Steve Beddingfield’s protocol is the one that brought me the most lasting recovery so he is kind of my hero.
That's for starters. My next post will tell about our de-worming experience. Until then, please peruse the links here to decide if de-worming yourself is worth trying. There is a wealth of information in these articles and the one sure-fire way I know of recovering from these parasite diseases is to educate ourselves. For anyone desperate to get started, I would recommend using over-the-counter pinworm medication. Doctors routinely give this to children with itchy butt (pinworms); however, the active ingredient - pyrantel pamoate - kills more than only pinworms. I like using the liquid suspension because you want to be able to adjust the dose. Take very small doses over several days, adjusting it as needed. You want to take enough to feel that something is happening but not so much that a rapid die-off of parasites makes you feel miserable. Getting rid of parasites is definitely one of those "slow and steady wins the race" kind of things.